I have posted three times about the chronic severe pain that I live with, so I won’t detail it here. Instead you can refer to my earlier posts, if you wish: PAIN, Pain Part Two, and Pain Part Three. Suffice it to say that I’m still in pain, and in the same amount of pain.
Yesterday I finally got to see the pain management doctor who my spine doctor referred me to back in July (!). That’s how long I had to wait for my initial appointment with her.
The referral was so that I could be prescribed opioid pain medications, which are now very difficult to obtain here in the US, due to the crisis with an increasing number of people with opioid addictions. My spine doctor and I had run through the gamut of other treatments without success in alleviating the pain.
After seeing the pain doctor yesterday, who categorically does not prescribe any type of medication on the first visit, and thinking the situation over, I’ve decided not to pursue opioid pain meds at all. Maybe this is a mistake. But I’m going to cancel my next appointment with her, which is in a month.
I have been getting along largely without pain meds for a few months now. The ones I had been taking were leftovers from old surgeries, the last of which was a year ago. You can see that I’m not a big pain pill taker. I completely ran out of pain pills a month ago, and I have survived several weeks of bitter winter temperatures and cold precipitation, which worsen the pain, without them.
I didn’t like the pain doctor. I also didn’t like the many expensive hoops through which I would have to jump in order to get her to prescribe pain meds for me.
There are other things that I do already to cope with the pain. Prayer and meditation can help, although actually I find that distracting myself with activity is even better. When things are really bad–a 9 on the scale from 0 to 10–I hop into a hot bath and soak awhile. Heating pads are good, too.
My daily, constant, pain level is at a 7. That is pretty darn high.
I won’t cancel the followup appointment with the pain doctor right away. I’ll keep thinking about whether I want to pursue getting opioid pain meds. But I’m pretty sure that I will just continue to do without. And instead I will do with other approaches to my pain.
So there: that’s the last you’ll hear from me about pain. Isn’t that nice? 🙂
We may not fully understand, but we think it is best to avoid opioids.
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I agree! 🙂
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I’m very sad about all this for you, Timi. Hugs.
Personally, I’d keep the appointment – you always have the choice of not taking meds if you don’t want them, or you could keep them for another time. Or just leave cancelling to a week before.
While it wasn’t like the conditions you’re suffering from (but was a pain bad enough to double me over, so probably a 9) I had cyclical pains every few days to weeks for a couple of years that really laid me low and, eventually I tracked it down to an intolerance to potatoes. (Which as you can imagine, I no longer eat). And prior to that I was very rapidly withdrawn from benzodiazepines which caused me all-over body pains that were relentless. (My muscles and other parts of my boy are now very weak from a 19 year addiction to benzos). What I did, eventually, was take doses of Benylin which is an antihistmine used as a cough medicine here in the UK, with the main ingredient Diphenhydramine. (https://www.drugs.com/diphenhydramine.html) It’s used also for insomnia but actually has an effect on relaxing the body too. Is that something you could get there and try? You can’t take it regularly as it is addictive after a few weeks’ use – but not in the same way as opiates.
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Thanks for your thoughtful reply, Val, which I will take into consideration. I’m not doing anything impulsively about the appointment. I’ll check into diphenhydramine and see if it is available here. I don’t usually have a problem with addiction–I simply don’t have that kind of constitution, luckily! 🙂
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Timi, if you need to talk about pain, do it. Our loads are lighter when shared.
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Thank you, Larry. I really appreciate that.
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I’m so sorry you’ve been having to cope with so much pain, Timi. 😦 I went back and read your 3 previous posts about it.
It’s not the same, but I suffered from chronic migraine until I was 49 when a neurologist prescribed Zomig for me. Thankfully it works well and the only side effect I notice is fatigue, which I’m happy to accommodate. Sometimes I shudder when I look back on how many long hours of my life were wasted lying on the couch in agony.
So I admire your determination to carry on and make the best of it. And I hope you find some relief somehow. I wonder if something like acupuncture or medical marijuana might help? I agree with Larry ~ loads are lighter when shared.
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Thanks, Barbara. Marijuana depresses me, which is a real problem for me, so that is out. Acupuncture isn’t covered by Medicare, and I can’t afford it, so I won’t know if it would help or not.
I’m still thinking about following up with the pain doctor. I would like to have something to take at those times when the pain hits a 9.
And thanks for extending the invitation along with Larry to talk it out. 🙂
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My view is that Self empowerment is crucial when it comes to deciding what’s best for you. By all means listen to the experts but never relinquish decision making to them. Once you become a passive victim you’re lost.
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So true, Robyn! Thank you for reminding me of this…
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I’d always considered opiate-based medicines to be highly addictive, Timi,, and can only think that your pain must have been severe enough for you to have been prescribed them. I have no idea which treatments would be best for you, but sincerely hope that whatever is offered brings you the much needed relief. Living with constant pain must be so hard. As a recent follower, I hadn’t realised how much you had to cope with, but I know you’ll make the right decision about the way you want to move forward.
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Thanks for your vote of confidence, Millie. I’m not dismissing opioids out of hand yet because my track record with them demonstrates that I don’t get dependent on them. It’s mostly a matter of me not wanting to jump through this doctor’s hoops, which are somewhat onerous and expensive. I didn’t like her much, to tell the truth. 😛
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